Fractured Memories: Because Demented People need Love, Too by Emily Page.
Emily and her father were extremely close; they had a unique and special father-daughter relationship. In this brutally honest and real book Emily first tells us about her larger than life father in a way we can really get to know and love him as she did; a vibrant, talented and colorful guy. Next, she brings us on her journey as a devoted daughter, caregiver and decision maker as we learn about how dementia manifested in her dad and slowly took him. She bravely offers up her thoughts recorded in her journal during this time and includes her beautiful artwork which depicts her dad, his faltering state of mind, and their relationship as it changed. I laughed and cried through this book as it touched my heart.
If you know me you probably are aware that my father has been living with dementia for almost a decade and my incredibly strong and brave mother is his primary caregiver along with daytime, lifesaving in-home caregivers. Day to day living is consistently stressful and worrisome; riddled with questions where no answers exist and little support is available. The doctors don’t know enough, many caregivers lack proper experience or intuition, most friends and family don’t come around often, and every little household chore becomes a huge burden to tackle. More recently Alzheimer’s and dementia have been in the spotlight due to publicity from news about Pat Summit, Glen Campbell, Ronald Reagan and Robin Williams, but the media (tv, movies, and books) had yet to present to me anything that resembles truly what dementia entails and what my family has been enduring…until Fractured Memories: Because Demented PeopleNeed Love, Too.
Its not always as simple as the person with dementia gradually just forgetting things and becoming quiet. It is so much more and so much worse. It’s more like watching your loved one go from being strong, independent, creative and reasonable to not driving, not knowing what to do with a pencil, unable to complete a sentence. Keeping your loved one clean, dressed, safe, fed, distracted, nonviolent, happy and occupied uses up every bit of energy. And if you are lucky to sleep at night you can recharge to be ready to do it all over again the next day, but often sleep doesn’t come because of the worries about money, medications, living situations, proper help, the future…Emily Page offers advise and tips for caregivers, dementia facilities, and friends and family of dementia patients…so many tidbits I have wanted to scream from the rooftops myself! She has touched on just how difficult this disease is for the patient and the family.
If you know anyone with dementia or Alzheimer’s – if you are a loved one, a caregiver, a friend, acquaintance, nurse, hospital worker or volunteer, YOU MUST READ THIS BOOK.
If you have lost someone due to dementia YOU MUST READ THIS BOOK.
And even if you have no connection to anyone with this disease YOU MUST READ THIS BOOK.
Education and understand can only help lead to new medications and hopefully a cure or preventions and better training, facilities and care for the increased number of people who end up with this devastating and debilitating disease that effects entire families as well as the patient. Kudos to author and artist Emily Page for being honest and truthful in her book and her artwork, and loving and loyal to her wonderful father. May his memory be for a blessing.
About the author as stated in Goodreads:
Emily Page is a professional artist and part-time writer. Working out of Raleigh, NC, Page spends most of her time elbow deep in paint, but comes up for air periodically to share her art and thoughts on her blog. She translated her ridiculous musings about her family’s journey through her father’s dementia into a book, Fractured Memories: Because Demented People Need Love, Too, available at http://shop.emilypageart.com/. Follow her on Twitter at @EmilyPageArt23, and read her blog at https://emilypageart.net/.